After reading the appropriate material, for further information contact the appropriately trained individuals for someone who can provide the appropriate equipment in your country. If there is no one from your country, you may need to come here and be trained yourself or do the best you can with the equipment that you must obtain (most often a portable ventilator or BiPAP machine, oximeter, and Cough-Assist device) and with the information in the above book and the Bibliography.
You can visit the very educational web sites of noninvasive ventilation users like Jeff Gray, a 37-year-old man with Duchenne muscular dystrophy, at www.non-invasiveventusers.net.
Services are also available through The Center and MDA Clinic in New Jersey. In the United States, you may contact our trained respiratory therapist, Mr. Lou Saporito at beeper: 1-973-466-9128 for questions, but please read the appropriate material first.
It is strongly recommended that, when at all possible, patients contact Ms. Keisha Brady () for an appointment and directions to the Jerry Lewis MDA Clinic.
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Dr. Bach's Articles: ©2000-2004, John R. Bach, MD, used by permission.
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